PkdFoundation Personal Profile

(1) Owned Pages (4) Edits (0) Comments Registered: February 2, 2010 11:13 AM

Last 10 Contributions:      PkdFoundation Tue, 02 Feb 2010 11:13 CDT

PKD Foundation

Established in 1982, the PKD Foundation is the only organization, worldwide, dedicated to fighting polycystic kidney disease (PKD). 

Our mission is critical: Promote programs of research, advocacy, education, support and awareness in order to discover treatments and a cure for PKD and improve the lives of all it effects.

We hope to fulfill our mission by inviting you to discover, connect and give through PKD Foundation programs and events across the United States and around the world.  We hope you will be inspired to discover, connect and give -- all in the hopes of ending PKD.

To get started, contact the PKD Foundation at 1-800-PKD-CURE or www.pkdcure.org

Connect locally with individuals impacted by PKD through one of more than 60 Foundation Chapters worldwide.  Your PKD Foundation Chapter provides.....

• Support:  Chapters hold regular meetings where patients can connect, share and help each other cope with the emotional aspects of a PKD diagnosis, while finding the local resources they need.
  
• Education:  In addition to sharing tips on how to find a good local nephrologist or renal dietitian, Chapters also host educational seminars throughout the year, bringing in top medical experts to discuss nutrition, transplantation, insurance issues and more.
• Awareness:  Chapter volunteers also work hard to raise awareness of PKD in their communities, reaching out to the media, neighbors, co-workers and the general public to educate and empower.  Increased awareness of PKD will help lead to additional funding for critical PKD research, education, advocacy and awareness.
  
• Advocacy:  Chapters also reach out to local and federal lawmakers through the PKD Foundation's advocacy program, working on a grassroots level to affect change and increase federal support of PKD research.
  
• Special Fundraising Events:  It's not all work.  As part of a Chapter, you'll also be invited to -- and maybe help lead -- fun social events aimed at raising funds for PKD Foundation programs.  Popular Chapter events include golf tournaments, motorcycle rides, wine tastings, casino nights and more.

Whether you become a Chapter leader or simply attend an event or meeting, don't wait any longer.  Connect with your community today!

http://www.pkdcure.org/tabid/532/default.aspx

Did you know that the lion’s share of money for PKD research comes from the federal government funding? More than 600,000 people suffer from PKD, yet it receives less in federal research funding than other far less prevalent genetic diseases. We need a volunteer to head up our Advocacy and Awareness Leadership position who will take an interest in how we as grass-roots citizens can help raise the standard of money allotted to PKD by the U.S. government. Could it be you? Our staff PKD Advocated in Washington D.C. is looking for volunteers to help promote this need to our government officials. Please think about devoting time to this very important issue.