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Revision [2971]

Most recent edit made on 2010-02-02 11:53:39 by PkdFoundation

Additions:

Whether you become a Chapter leader or simply attend an event or meeting, don't wait any longer.  Connect with your community today!

http://www.pkdcure.org/tabid/532/default.aspx

Make a difference in the lives of 12.5 million people.


Deletions:

Whether you become a Chapter leader or simply attend an event or meeting, don't wait any longer.  Connect with your community today! 

 

NASHVILLE CHAPTER - Providing Hope and Support

If you would like to contact the Nashville Chapter by phone, please call 1-800-PKD-CURE.

 

Connect with other PKD patients and families in your area.

 

Click here to download our Summer Chapter newsletter!

 

The Nashville PKD Chapter now meets at the Cool Springs YMCA at 121 Seaboard Lane at 7:00 p.m. on the 4th Tuesday of selected months (with the exception of November - January). Check this page for directions to our meetings.

Our next meetings will be: 

Tuesday, February 23, 2010
Featured Speaker: Deonna Moore P.A. from Vanderbuilt University.


Deonna will speak on what is involved in being approved for a Kidney Transplant and for the Deceased Kidney Donor List.

 

March 23:  No Meeting due to Spring Break

 

Tuesday, April 27, 2010 - Chapter Meeting
Possibly featuring renowned Vanderbilt Nephrologist Dr. Julia Lewis who is trying to work us into her busy schedule.  Check back for updates!

 

HOLIDAY GIFT WRAP    
The Nashville Chapter held a successful Holiday Gift Wrap and Borders Cool Springs on Friday December 18.  Volunteer Jennifer Stockdale organized and staffed the event.  Volunteers agreed that it was a “lot of fun and a good way to get across our need for a Cure for PKD”.  Think about giving 2 hrs of time with another volunteer to do this next Christmas season!

Chapter News.
An Unexpected Gift!
Carol Boeing, Chapter Coordinator, was the happy recipient of a kidney transplant on November 11, 2008. She was ready to go on dialysis when a kidney match became available. What perfect timing! Carol is doing well, now, under the care of the Vanderbilt Transplant Team.

 

United on the Hill
PKD volunteer, Cain Hall, will be traveling to Washington on March 1 -2 to be an advocate for PKD on Capital Hill!  Cain wants YOU to go with him!  Visit www.pkdcure.org to learn more about the yearly event.

 Cain wants you to go with him to United on the Hill!

 

 

A "soggy" family pic with Christy Passmore on far left in polka-dot raincoat. 

Nashville Volunteer Christy Passmore and her Walk Team, The Back Porch Players have produced a CD for sale with all proceeds benefitting the PKD Foundation!  For more information about the CD sales, contact Christey at christy.passmore@ vanderbilt.edu.

 

 

Nashville Volunteer Christy Passmore and her Walk Team, The Back Porch Players have produced a CD for sale with all proceeds benefitting the PKD Foundation!  Way to go, Christy and the Back Porch Players!

 

Nashville Chapter Coordinator, Carol Boeing, 
and Memphis Chapter Coordinator, Karyn Waxman 
at the "Champions on the Hill" event in 
Washington D.C.

 

Learn More About PKD.

Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.

 Click here to visit our NEW learning center and to view our FREE educational webinars!

 Join in a variety of fun events. 

Plan your own Event!
All of the events that take place in the Nashville PKD Foundation Chapter, large or small, only happen because someone decided to organize them. We are always receiving checks for $50 to $500 from people who have put together a craft fair, bake sale, gotten their business to sponsor a casual day or any of a dozen other things. 
There are also people who have decided they have the time and energy to put on a major event or who are connected to church or school group who help them put on a major event. Many other charities are starting to connect with sororities, fraternities, or other social organizations to put on an annual event and you can too!
If you have an idea for an event that you would like to put together, or if you have a business, church or community group that may like to get involved, please contact us at nashvillechapter@pkdcure.org and we'll help you get the ball rolling.

 

 

Make a difference in the lives of 12.5 million people.

 





Revision [2970]

Edited on 2010-02-02 11:48:48 by PkdFoundation

Additions:

To get started, contact the PKD Foundation at 1-800-PKD-CURE or www.pkdcure.org

Connect locally with individuals impacted by PKD through one of more than 60 Foundation Chapters worldwide.  Your PKD Foundation Chapter provides.....

  • Support:  Chapters hold regular meetings where patients can connect, share and help each other cope with the emotional aspects of a PKD diagnosis, while finding the local resources they need.
  • Education:  In addition to sharing tips on how to find a good local nephrologist or renal dietitian, Chapters also host educational seminars throughout the year, bringing in top medical experts to discuss nutrition, transplantation, insurance issues and more.
  • Awareness:  Chapter volunteers also work hard to raise awareness of PKD in their communities, reaching out to the media, neighbors, co-workers and the general public to educate and empower.  Increased awareness of PKD will help lead to additional funding for critical PKD research, education, advocacy and awareness.
  • Advocacy:  Chapters also reach out to local and federal lawmakers through the PKD Foundation's advocacy program, working on a grassroots level to affect change and increase federal support of PKD research.
  • Special Fundraising Events:  It's not all work.  As part of a Chapter, you'll also be invited to -- and maybe help lead -- fun social events aimed at raising funds for PKD Foundation programs.  Popular Chapter events include golf tournaments, motorcycle rides, wine tastings, casino nights and more.

Whether you become a Chapter leader or simply attend an event or meeting, don't wait any longer.  Connect with your community today! 

 

NASHVILLE CHAPTER - Providing Hope and Support

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD.


Chapter Coordinators: Carol Boeing and Dawn Barbee Nashville Chapter@pkdcure.org
If you would like to contact the Nashville Chapter by phone, please call 1-800-PKD-CURE.

Connect with other PKD patients and families in your area.

 

Click here to download our Summer Chapter newsletter!

 

The Nashville PKD Chapter now meets at the Cool Springs YMCA at 121 Seaboard Lane at 7:00 p.m. on the 4th Tuesday of selected months (with the exception of November - January). Check this page for directions to our meetings.

Our next meetings will be: 

Tuesday, February 23, 2010
Featured Speaker: Deonna Moore P.A. from Vanderbuilt University.


Deonna will speak on what is involved in being approved for a Kidney Transplant and for the Deceased Kidney Donor List.

 

March 23:  No Meeting due to Spring Break

 

Tuesday, April 27, 2010 - Chapter Meeting
Possibly featuring renowned Vanderbilt Nephrologist Dr. Julia Lewis who is trying to work us into her busy schedule.  Check back for updates!

 

HOLIDAY GIFT WRAP    
The Nashville Chapter held a successful Holiday Gift Wrap and Borders Cool Springs on Friday December 18.  Volunteer Jennifer Stockdale organized and staffed the event.  Volunteers agreed that it was a “lot of fun and a good way to get across our need for a Cure for PKD”.  Think about giving 2 hrs of time with another volunteer to do this next Christmas season!

Chapter News.
An Unexpected Gift!
Carol Boeing, Chapter Coordinator, was the happy recipient of a kidney transplant on November 11, 2008. She was ready to go on dialysis when a kidney match became available. What perfect timing! Carol is doing well, now, under the care of the Vanderbilt Transplant Team.

 

United on the Hill
PKD volunteer, Cain Hall, will be traveling to Washington on March 1 -2 to be an advocate for PKD on Capital Hill!  Cain wants YOU to go with him!  Visit www.pkdcure.org to learn more about the yearly event.

 Cain wants you to go with him to United on the Hill!

 

 

A "soggy" family pic with Christy Passmore on far left in polka-dot raincoat. 

Nashville Volunteer Christy Passmore and her Walk Team, The Back Porch Players have produced a CD for sale with all proceeds benefitting the PKD Foundation!  For more information about the CD sales, contact Christey at christy.passmore@ vanderbilt.edu.

 

 

Nashville Volunteer Christy Passmore and her Walk Team, The Back Porch Players have produced a CD for sale with all proceeds benefitting the PKD Foundation!  Way to go, Christy and the Back Porch Players!

 

Nashville Chapter Coordinator, Carol Boeing, 
and Memphis Chapter Coordinator, Karyn Waxman 
at the "Champions on the Hill" event in 
Washington D.C.

 

Learn More About PKD.

Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.

 Click here to visit our NEW learning center and to view our FREE educational webinars!

 Join in a variety of fun events. 

Plan your own Event!
All of the events that take place in the Nashville PKD Foundation Chapter, large or small, only happen because someone decided to organize them. We are always receiving checks for $50 to $500 from people who have put together a craft fair, bake sale, gotten their business to sponsor a casual day or any of a dozen other things. 
There are also people who have decided they have the time and energy to put on a major event or who are connected to church or school group who help them put on a major event. Many other charities are starting to connect with sororities, fraternities, or other social organizations to put on an annual event and you can too!
If you have an idea for an event that you would like to put together, or if you have a business, church or community group that may like to get involved, please contact us at nashvillechapter@pkdcure.org and we'll help you get the ball rolling.

Make a difference in the lives of 12.5 million people.

Did you know that the lion’s share of money for PKD research comes from the federal government funding? More than 600,000 people suffer from PKD, yet it receives less in federal research funding than other far less prevalent genetic diseases. We need a volunteer to head up our Advocacy and Awareness Leadership position who will take an interest in how we as grass-roots citizens can help raise the standard of money allotted to PKD by the U.S. government. Could it be you? Our staff PKD Advocated in Washington D.C. is looking for volunteers to help promote this need to our government officials. Please think about devoting time to this very important issue.



Deletions:

To get started, contact the PKD Foundation at 1-800-PKD-CURE or www.pkdcure.org





Revision [2969]

Edited on 2010-02-02 11:32:13 by PkdFoundation

Additions:

PKD Foundation

Established in 1982, the PKD Foundation is the only organization, worldwide, dedicated to fighting polycystic kidney disease (PKD). 

Our mission is critical: Promote programs of research, advocacy, education, support and awareness in order to discover treatments and a cure for PKD and improve the lives of all it effects.

We hope to fulfill our mission by inviting you to discover, connect and give through PKD Foundation programs and events across the United States and around the world.  We hope you will be inspired to discover, connect and give -- all in the hopes of ending PKD.

To get started, contact the PKD Foundation at 1-800-PKD-CURE or www.pkdcure.org

 




Deletions:

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Revision [2968]

The oldest known version of this page was edited on 2010-02-02 11:13:02 by PkdFoundation [Has Joined CivicScope Nashville!]

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